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                <text>A submission on the death of a  death of a child to the Forum on end-of-life in Ireland  on Behalf of Anamcara Parental &amp; Sibling Bereavement Support.</text>
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The purpose of the Care for People Dying in Hospitals Project was to pioneer a process for change in the culture of care and organisation with regard to dying, death and bereavement in hospitals.  The project also aimed to enable the adoption of these changes in other hospitals. Research for the project pointed to tension between the needs of an acute hospital and the needs of dying people and their families. The limitations of the hospital’s physical environment, the shortage of private spaces, the need to develop skills for communicating in difficult situations, the work pressures on staff at all levels, and difficulties with recognising the dying state as a legitimate diagnosis were regarded as significant challenges.&#13;
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The project lead to the identification of the four themes which became the basis for the planning and development of the Hospice Friendly Hospitals programme; Integrated Care, Communication, Dignity and Design and Patient Autonomy. &#13;
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2009 -2016 </text>
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The forum on end-of-life project began in 2009 with the forum on end-of-life consultations. &#13;
The forum on end-of-life programme also initiated a conference to be held every two years to continue engaging the Irish public, health and social care professionals in issues related to death dying and bereavement. &#13;
Forum conferences; &#13;
•	Kilmainham Castle on March 11, 2009 – further details http://hospicefoundation.ie/programmes/public-awareness/forum-on-end-of-life/forum-2013-length-of-days-quality-of-life/forum-2009/  &#13;
•	Forum 2011 chaired by the Chairperson of the National Council of the Forum on End of Life, Mrs Justice Catherine McGuinness. Taoiseach Enda Kenny launched the Think Ahead programme at this conference. More details http://hospicefoundation.ie/programmes/public-awareness/forum-on-end-of-life/forum-2013-length-of-days-quality-of-life/forum-2011/ &#13;
•	Forum 2013 – this conference was titled ‘Length of Days, Quality of life’ and took place on October 24th in Dublin Castle. More details http://hospicefoundation.ie/programmes/public-awareness/forum-on-end-of-life/forum-2013-length-of-days-quality-of-life/  &#13;
•	Forum  2015 – the conference was titled “Dying to talk? – Conversations about end-of-life in Ireland’ http://hospicefoundation.ie/programmes/public-awareness/forum-on-end-of-life/forum-2015/ &#13;
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